RARE DISEASES OBSERVATORY
There are over 7000 rare diseases, and the majority are under researched. Estimated 400 million people around the world have a rare disease, but only 5% of rare diseases have a chance of treatment. That is why rare diseases need to be researched.
The Rare Diseases Observatory enables easy monitoring of rare diseases. By combining different global data sources, we provide the information and knowledge needed to empower all: patients, researchers and clinicians. Our initial focus is on rare neurodevelopmental disorders (NDDs).
WE ARE MONITORING RARE DISEASES
THROUGH DIFFERENT DATA SOURCES & INDICATORS
16 MONITORED NEURODEVELOPMENTAL DISORDERS
AT A GLANCE
Shows NDDs and their occurrence in global media news, social media, and scientific publications. The area of the circle represents the number of news, social posts, and scientific publications.